Category Archives: Status Epilepticus

The Fall Of An Epileptic


Today I am bedbound. During the night I awoke screaming in agony. Why? This delightful type of seizure that they refer to as “abscence”. I felt myself going. I even felt my eyes roll back in their sockets. I was … Continue reading

Posted in "Mutants", 2013, Adapting, Attitudes, Born This Way, Disability, Epilepsy, Epilepsy Action, Epilepsy Awareness, Epilepsy Society, Health, How epilepsy Can Kill, Injuries, Neurological, SEDS, Seizures, Status Epilepticus | 34 Comments

“You Won’t Be Seeing Frank Any More; He’s… No Longer Here”


That was the first thing that my neurologist told me when I met with him this afternoon – a year after I last saw my Epilepsy Nurse, Frank La Rocca. Last August I had to cancel an appointment due to … Continue reading

Posted in "Mutants", 2013, Adapting, Autism, Autism Awareness, Autistic Behaviours, Autistic Meltdown, Autistic Temperament, Born This Way, Disability, English Hospitals, Epilepsy, Epilepsy Action, Epilepsy Awareness, Frank La Rocca, Health, Hope, Living With Asthma, Living With Atopic Syndrome, Medication, Neurological, Seizures, Status Epilepticus, The Dark Side Of Autism, Viva La Rocca | 29 Comments

Sexuality And Disability


In my hometown of Cheltenham lives a very famous lady. She is famous for being amazing. For the sake of argument, we’ll call her “Lisa”. Lisa is only a few years older than myself and is a Thalidomide victim. She … Continue reading

Posted in "Mutants", 2013, Attitudes, Autism, Autistic Behaviours, Autistic Meltdown, Autistic Temperament, Bodily Functions, Body Image, Born This Way, Desirability, Disability, Epilepsy, Epilepsy Awareness, Health, Illness, Living With Asthma, Living With Atopic Syndrome, Love, Marriage, Medication, Neurological, Not A Supermarket Tomato, Seizures, Self, Sensuality, Sexuality, Status Epilepticus, The Black Dog | 14 Comments

An Overview Of 2012


Every year, for as long as I can remember, I have always taken the year that was and written a review of it. As a child it was in paper diaries; for the last twelve years or so it has … Continue reading

Posted in 2012, Always Look On The Bright Side Of Life, Attitudes, Autism, Body Image, Born This Way, Confidence, Cooking, Courgettes, Cross-stitch, Diet And Fitness, Disability, Disabled Gardening, Discworld, EDNOS, Epilepsy, Epilepsy Action, Epilepsy Awareness, Exercise, Family, Fezes Are Cool, Friends, Fun, Geekiness, Girl On Film, Health, Hobbies, Home, Home Crafts, I Stitch So I Don't Stab Stupid People, Injuries, Kitchen Witchy, Making A Lovely Mess, Marriage, Medication, Memories, Neurological, Not A Supermarket Tomato, Pickling, Positivity, Progress, Proud To Be Autistic, Proud To Be Me, Psychological, Refusing To Be Beaten, Seizures, Self, Self-Realisation, Self-worth, Status Epilepticus, Tales Of The Rambling Rose, Wedding, Wedding Gown, What Not To Do In The Kitchen, Winter, Writing, Yule | 21 Comments

Status Epilepticus. Again


It truly doesn’t take very much to set me off, it would seem. This time I was triggered whilst talking to my son’s foster father. I only wanted to check that he’d recieved my message about my new phone number, … Continue reading

Posted in Alcohol, Anxiety, Autism, Autism Awareness, Autistic Behaviours, Autistic Meltdown, Born This Way, Carers, Disability, Discomfort, English Hospitals, Epilepsy, Epilepsy Action, Epilepsy Awareness, Health, Heightened Awareness, How epilepsy Can Kill, Medication, Neurological, NHS, Pain, Perception, Proud Parent Of An Autistic Child, Proud To Be Autistic, Proud To Be Me, Real Life Horror, Seizures, Self, Status Epilepticus, Symptoms, The Ignorance Of Strangers | 27 Comments

Can I Get Superpowers With That?


For some time now, I’ve been trying to come up with a clever way of talking about side effects in epilepsy medication. My friend and fellow person with epilepsy (and Marvel comics fan, it seems!) Ant has beaten me to … Continue reading

Posted in "Mutants", 2012, Always Look On The Bright Side Of Life, Born This Way, Comparisons, Epilepsy, Epilepsy Action, Epilepsy Awareness, Humour, Injuries, Marvel Characters, Medication, Neurological, Side Effects, Status Epilepticus | 2 Comments

I Have Always Been A Medical Mystery…


My body has survived many things over the years that it probably shouldn’t have survived at all. I suffer Status Epilepticus on what now seems to be a regular basis and really ought to spend more time in A&E than … Continue reading

Posted in "Mutants", 2012, Alcohol, Autism, Blogging, Born This Way, Curiosity, Epilepsy, Health, Nature, Neurological, Rumination, Status Epilepticus, Tales Of The Rambling Rose, Wolverine | 18 Comments

Discworld Convention, Water Fights And Laughing Through Epilepsy


The husband-shape and I are now back on Roundworld, after having fun at the Discworld Convention. Truly, it’s wonderful to escape the real world every couple of years and catch up with old friends whilst meeting new ones. The Discworld … Continue reading

Posted in Accomplishments, Adapting, Always Look On The Bright Side Of Life, Attitudes, Born This Way, Clothes And Cosplay, Confidence, Disability, Discworld, English Hospitals, Epilepsy, Epilepsy Awareness, Excitement, Family, Fandom, Friends, Health, Injuries, Jo Grant, Katy Manning, Kitchen Witchy, Neurological, Positivity, Proud To Be Me, Refusing To Be Beaten, Seizures, Sir Terry Pratchett, Status Epilepticus, Tales Of The Rambling Rose, The Things I Do In The Name Of Fandom! | 16 Comments

When The Drugs Don’t Work


On Tuesday I had an emergency appointment with my epilepsy nurse, after he picked up the frantic message that I left on his system over the weekend. He decided not to let me wait another couple of weeks for the … Continue reading

Posted in Alcohol, English Hospitals, Epilepsy, Health, Medication, Neurological, NHS, Psychological, Seizures, Self-worth, Status Epilepticus | 28 Comments

Epilepsy And Autism – When Two Worlds Collide


Disclaimer: I am not paid to post links to either Epilepsy Action or the National Autistic Society. The fact that I can create links to take people to sites that can offer the advice and support that they are looking … Continue reading

Posted in "Mutants", Anxiety, Attitudes, Autism, Autism Awareness, Blogging, Born This Way, Carers, Disability, English Hospitals, Epilepsy, Epilepsy Action, Health, How epilepsy Can Kill, Love, Neurological, NHS, Seizures, Status Epilepticus | 3 Comments