Category Archives: Adapting

Epilepsy and Blogging


Sometimes, the seizures are so severe that inertia and memory loss set in. My last seizure was a week ago – but I’m still not really making sense of things. D will talk to me and I won’t have understood … Continue reading

Posted in Acceptance, Adapting, Adventures In Preserves, Always Look On The Bright Side Of Life, Born This Way, Choose Life, Cross-stitch, Disability, Disabled Gardening, Doctor Who, Epilepsy, Family, Health, Hobbies, Home, Home Crafts, Homemaking, I Stitch So I Don't Stab Stupid People, Marriage, Milestones, Neurological, Personal Goals, Pickling, Seizures, Self, Strength | 14 Comments

Turning Japanese And Cross-Stitch Flowers


I am still stuck in bed, but feeling a good deal better. My bruise has come out in some rather amazing hues, but the pain isn’t as bad as it was – in fact, I managed to roll over to … Continue reading

Posted in "Mutants", 2013, A Madman With A Box, Adapting, Always Look On The Bright Side Of Life, Born This Way, Carers, Choose Life, Disability, Doctor Who, Epilepsy, Epilepsy Awareness, Health, I Stitch So I Don't Stab Stupid People, Injuries, Marriage, Neurological, Not A Supermarket Tomato, Seizures | 26 Comments

The Fall Of An Epileptic


Today I am bedbound. During the night I awoke screaming in agony. Why? This delightful type of seizure that they refer to as “abscence”. I felt myself going. I even felt my eyes roll back in their sockets. I was … Continue reading

Posted in "Mutants", 2013, Adapting, Attitudes, Born This Way, Disability, Epilepsy, Epilepsy Action, Epilepsy Awareness, Epilepsy Society, Health, How epilepsy Can Kill, Injuries, Neurological, SEDS, Seizures, Status Epilepticus | 34 Comments

Social Anxiety


“I don’t think they like me.” “Well, they seemed to last time I collected you.” “I don’t know; I don’t think they really know what to make of me.” My husband and I have this same conversation every month when … Continue reading

Posted in 2013, Accomplishments, Adapting, Always Look On The Bright Side Of Life, Anxiety, Aspirations, Attitudes, Autism, Born This Way, Chrysalis, Confidence, Emerging Butterfly, Fear, Friends, Hobbies, Home, Home Crafts, Kitchen Witchy, Milestones, Neurological, Not A Supermarket Tomato, Personal Goals, Pickling, Positivity, Progress, Proud To Be Autistic, Self, Self-worth, Social Anxiety, Tribble Towers, Women's Institute | 23 Comments

The Ultimate Devotion


I love to write free-form, unstructured poetry. It’s honest; it’s pure; it’s emotive in a way that structured, rhyming stanzas are sometimes not. I dedicate this free-form to my wonderful husband, D, who has no idea how much I truly … Continue reading

Posted in 2013, About The Carer, Adapting, Autism, Autistic Meltdown, Born This Way, Creative Writing, Disability, Epilepsy, Health, Love, Marriage, Neurological, Non Fiction, Not A Supermarket Tomato, Proud To Be Me, Psychological, Seizures, Sensory Overload, Symptoms, The Dark Side Of Autism, Tribble Towers, Vulnerability, Writing | 24 Comments

“You Won’t Be Seeing Frank Any More; He’s… No Longer Here”


That was the first thing that my neurologist told me when I met with him this afternoon – a year after I last saw my Epilepsy Nurse, Frank La Rocca. Last August I had to cancel an appointment due to … Continue reading

Posted in "Mutants", 2013, Adapting, Autism, Autism Awareness, Autistic Behaviours, Autistic Meltdown, Autistic Temperament, Born This Way, Disability, English Hospitals, Epilepsy, Epilepsy Action, Epilepsy Awareness, Frank La Rocca, Health, Hope, Living With Asthma, Living With Atopic Syndrome, Medication, Neurological, Seizures, Status Epilepticus, The Dark Side Of Autism, Viva La Rocca | 29 Comments

Autism: I’m Not Crazy, But Sometimes My Brain Skips A Beat


Appearances can be deceptive. Outwardly, to the bystander, I’m the smiling, friendly blonde lady who is confident in herself and still retains an appearance of youthfulness and some of the good looks she had in her late teens to mid … Continue reading

Posted in "Mutants", 2013, Adapting, Autism, Autism Awareness, Autistic Behaviours, Autistic Meltdown, Autistic Temperament, Born This Way, Disability, Heightened Awareness, Hyperacusis, Neurological, Nightmares, Not A Supermarket Tomato, Proud To Be Autistic, Proud To Be Me | 14 Comments

An Ode To Achilles Tendinitis


This is not so much a serious blog post (have you ever known me to be completely serious all the time? Not happening on this planet any time soon) as it is a gentle laugh at myself. You probably all … Continue reading

Posted in 2013, Adapting, Always Look On The Bright Side Of Life, Body Parts, Choose Life, Creative Writing, Health, Hobbies, Injuries, Jogging, Pain | 9 Comments

Chronic Fatigue Syndrome, As Told By A Sufferer


As I believe I may have mentioned before, my sister – Serena Lesley – has been battling CFS since late 2011. This is a subject that I have been wanting to cover, but as I am completely unqualified to talk … Continue reading

Posted in 2013, Accomplishments, Adapting, Always Look On The Bright Side Of Life, Attitudes, Bodily Functions, Body Image, CFS, Chronic Fatigue Syndrome, Discomfort, Exercise, Family, Health, Illness, Pain, Personal Goals, Side Effects, Strength, Symptoms, Tenacity | 10 Comments

Goodbye To Compass


This morning we had our final meeting with Sheila, our Compass counsellor. Since that first meeting, when I was still so withdrawn and suspicious of strangers, it hasn’t really felt like counselling at all; it’s been more like visiting a … Continue reading

Posted in 2012, Accomplishments, Adapting, Alcohol, Anxiety, Body Image, Cooking, Counselling, Diet And Fitness, Disability, Discomfort, Doctor Who, Doctor Who Scarf, EDNOS, Epilepsy, Epiphany, Exercise, Fear, Food, Food Experimentation, Health, Home, Home Crafts, Humour, Kitchen Witchy, Life Plans, Milestones, Pickling, Positivity, Progress, Psychological, Self-Realisation, Self-worth, Tenacity, Therapy, Tribble Towers | 4 Comments