I stand quietly

As an autistic adult woman and the mother of an autistic son, whose life is impacted so much more than mine, I cannot read this without weeping.


Dirty, Naked & Happy

I stand quietly while you do somersaults on the bed as you aren’t being naughty, you are just trying to get your out of sync body under control.

I stand quietly by the toilet door every time you need to go, and come with you around the house, and sometimes even just across the room, because I know you can feel truly frightened when you are not near me.

I stand quietly at the supermarket checkout while everyone stares at you barking like a dog and blowing raspberries on my arms to cope with the buzzing lights.

I stand quietly while you tell the baffled shop owner that you are looking for shoes that feel hard like splintered wood because your skin can’t bear soft things.

I stand quietly when the attendant gives us scornful looks when I ask for the key to the disabled toilet because the hand dryer…

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About Missus Tribble

Media volunteer for Epilepsy Action (UK) and advocate for both epilepsy and autism awareness. Would like a Tardis when I grow up.
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4 Responses to I stand quietly

  1. willowdot21 says:

    I read this too and I wept . I truly believe that unless you experience this there is no way you can fully understand. I have a nephew with Asperger’s he is in his thirties and still needing care. Autism and all of it’s spectrum are as you say a cruel and harshly demanding disease. You if anyone can understand that.

    • I don’t think of autism as a disease; it’s a part of who a person is. My son and I are just unique, that’s all, and we face challenges that other people don’t – but we’re also both full of hidden talents that other people don’t have 🙂

  2. willowdot21 says:

    Apologies disease is completely the wrong word and I have put my foot in it again. Sorry it is not what I meant at all .

  3. I assure you that you’ve definitely not “put your foot in it”. Rather, you gave me an opening to explain to casual passers by who may not really know what autism is, or how each individual sees it. For some it’s a disease – a curse even – but for me it’s just who I am. When you’ve met one autistic person you’ve met one autistic person; we don’t all think and feel the same, or even share the same views on our differentness 🙂 xx

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