Wheelchair


WheelchairI can walk; I can even jog a little, and dance in short bursts. I can get to the local shops and back and sometimes I don’t even need my walking stick.

What I cannot do, however, is have days out, spend too much time in the city centre that I love so much or get into London to meet friends for drinks. Even my Book Club is a struggle; D can walk me to the venue from the car, but after a couple of hours in discussion about books and generally chatting to nice people I am physically and emotionally frazzled and struggle to make it back to the car when D collects me. Even getting to Galleywood Common for a picnic is out of the question because too much activity is… well, it’s too much. I either seize or I am physically sick – sometimes both. I am prone to falls and – especially in hot weather – fainting.

Therefore, I have bitten the bullet and ordered myself a wheelchair. Not because I am lazy, or defeatist, but because I am so tired of having to stay home due to post-seizure brain fog or fear of fainting. I want to be able to do more, not less!

I very often attend events and forget my limits, which can result in meltdown, seizure and sometimes even vomiting. A wheelchair will give me a physical reminder that I mustn’t become overexcited or overconfidant and that I need to remember to relax and take a few deep breaths sometimes.

Many wheelchair users can walk, but having access to a chair opens up an entire plethora of opportunities that they may well otherwise be too tired/sick/physically or emotionally limited from to indulge in.

I am not ashamed to admit – finally – that I need a wheelchair if I want to function more outside of the home. I’ve spent too long pontificating on the matter already and so I am determined to open up opportunites that are lost to me if it means having to walk for too long.

About Missus Tribble

Media volunteer for Epilepsy Action (UK) and advocate for both epilepsy and autism awareness. Would like a Tardis when I grow up.
This entry was posted in 2013, Acceptance, Adapting, Attitudes, Autism, Autistic Behaviours, Autistic Meltdown, Book Club, Disability, Disability Aids, Epilepsy, Epilepsy Awareness, Neurological, Not A Supermarket Tomato, Personal Goals, Positivity, Proud To Be Autistic, Sensory Overload, Tenacity, Travelling, Walking aids, Wheelchairs. Bookmark the permalink.

19 Responses to Wheelchair

  1. Amy Aletheia says:

    Powerful. Thanks for sharing. 🙂

  2. argylesock says:

    Good for you, my friend. I hope your wheelchair is comfortable and that it liberates you, as mine does me. Is this the right model for you? I ask because, looking at the photo, I see several things that I wouldn’t recommend. It’s probably not too late to exchange this one for another. But you’re not me. Your choice, your mobility, your freedom.

    • This isn’t the wheelchair I ordered – just a generic picture – but I ordered one similar because it isn’t for regular use and I wanted to remain as lightweight and streamlined as possible. As a carer I dealt with wheelchairs like this one quite often and never had any issues with the handling. I even sat in one when a friend arrived to take me out for a smoke when I had my son, so I know that a chair like this is comfortable and pretty much ideal for my personal needs 🙂

      • argylesock says:

        Oh good. So you don’t want to self-propel the wheelchair, then? For that you’d need larger back wheels. Brakes would be useful too. But as I said, this is for you not me.

      • I can’t trust my coordination enough to self propel – I’d find myself rolling down steps before I realised what I was doing! I’m assuming this thing will have a brake, but with Dom pushing me it’s not a complete nessessity 🙂

  3. Dear Mrs. T, you are doing what you need to do to keep going. Best wishes!

  4. paulaacton says:

    Okay hun you can fool the rest of them but not me I know this is just a stepping stone towards you getting a motorised chair that you can convert to use for cosplay as Davros – Dom might not have clicked yet but I know you too well I dare you to tell me that thought has not gone through your mind lol – on a serious note life is too short to allow pride to hold you back from doing and seeing things because you don’t want to admit limitations, celebrate the freedom it will give you decorate it with tinsel at christmas while enjoying a wander round a christmas fayre xxx

    • Curses, you got me! Haha, actually D was joking yesterday about Dalekising me (“You just need a whisk and a couple of sink plungers now!”) and I *had* considered Davros!

      We hadn’t thought about tinsel at Christmas though… that would be a laugh – and I bet I can find some Dalek stickers or something 🙂

  5. I’m proud of you. I’m debating when I need to bite this bullet myself. I can only do about a hour of physical activity before I’m wiped for the whole day. So, it may be soon.

  6. Very sensible of you. I wish some others would also take that view – one of our senior Sisters is refusing to admit that she’s not just getting old but has actually become old, and ends up making herself ill by trying to walk too far. There’s nothing the doctors can do for her – it’s simply that her body is worn out from 9 decades of life. But she’s understandably unimpressed by not being able to be as active as she was.

  7. Hi, I’ve just come across your blog from Lori’s :). I have a handicapped daughter, who’s 23 yrs. She can walk, but with difficulty so not very far. We had a great wheel chair, colourful with Salamander designs on the wheel covers, but she’d out grown it and as she no longer lives with us full time, we hadn’t bought another one. There’s also the cost of course. We’ve just been away on holiday and borrowed a chair for her and it made such a difference. We could go out with her and do what ever we wanted and she wasn’t so worn out she couldn’t enjoy herself. So go for it and get out there. Personalising your chair can make it a much friendlier aid ;).

    • Thanks for stopping by! I’m a big fan of Doctor Who, so my husband and I are already looking at ways to make it a part of my biggest TV love! We also plan to decorate at Christmas to wander around the Christmas Market, and the husband plans to rig a wire to hang some Mistletoe over my head. After all, disability does not equal a sense of humour fail 🙂

  8. If it gets you out and about, it’s got to be good. I always kinda hankered after a wheelchair, just because I’m lazy (not like you). But hey, you can sex it up with flowers and rhinestones maybe.

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